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Thread: Thyroid panels are in. Have some questions before I talk to the doc

  1. #49
    Super Chief-Ninja Moderator grammy1952's Avatar
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    Yes I'd ask to have my dose raised. He might listen with the higher TSH. It's clearly gone up a lot which means more hypothyroidism to the doctors who pay attention to TSH. But you really need to be gluten free with any autoimmune disease. I didn't realize you weren't. that's always the very first thing to try. It drives all autoimmune disease. I don't have any detectable antibodies now after so long gluten free.

    Interesting about the LDN thing but it's sure not helping your thyroid either. Your free T3 should be 3.4 so it's very much lower than it should be. I feel awful if mine gets under 3.Yours isn't even in range let alone optimal. I hope the doctor listens!
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  2. #50
    Chief Moderator (my happy place :) Leez's Avatar
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    Thank you. Funny, I thought he would read it as "oh she's in normal TSH range now, so everything is great and medication is no longer needed".

    I will ask for a higher dose. Thank you so much for offering your opinion on this. Its going to be an uphill battle with my doctor, so I have to go in armed and ready to push through. I don't like have to be adversarial with him. Its stressful.

    What continues to puzzle me is that I feel fine, I have energy, I don't need a nap during the day, and don't really have aches or pains that seem beyond what you might expect at my age. I have been gluten free for periods of over a year several times. I never saw any positive changes from avoiding it.

    In fact, right now, my digestion is the best its ever been, I no longer fight chronic constipation, my sleep is interrupted by hot flashes, but I get enough of it even though it's broken up. I'm no longer cold all the time, and my fingers and feet don't get icey when I'm at my desk anymore. My hair is shiny and not thinning, my skin is not dry. I'm actually feeling healthier than I ever have. So other than trying to treat numbers, I just haven't had any physical motivation to go gluten free again. One thing I learned from doing The Plan was that my body reacts to food sensitivities with almost instant constipation. I don't get that when I eat gluten grains. But I get it if I accidentally eat corn or eggs.

    But aside from all of that, I know you are right and I should do it. Part of what is holding me back is that I haven't found a gluten free bread that I think is worth eating. Just when I was getting ready to order Sami's, they changed their recipe to include some problem ingredients for me. I've been going to try one of the THM gluten free sourdough recipes. Maybe I'll get a starter going tonight and see what happens.

    I kind of have in the back of my mind that there is something else causing my hot flashes other than menopause, because BHRT didn't even make a dent in them. I tried 3 times. But I've had thyroid and CT scans looking for stuff and even an MRI and nothing shows up.

    I've read that LDN can sometimes take a year or more to kick in. Some people seem to get great benefits right away, others have to wait. I was really hoping I would get the "sleep as though dead" effect, but alas, it was not to be. Ha. Wait till the doctor finds out I've been taking LDN. I told him a couple visits ago that I wanted to try it. He took my printed info and never mentioned it the next time I was there. That is pretty much what happens when I take in thyroid info too. It gets ignored or dismissed. If I didn't want the prescription re-issued, I wouldn't even go back to him. I may ask him to prescribe the LDN anyway and hopefully get some of it covered with my insurance. I might as well try.
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    Medical Disclaimer: My statements are not intended to treat, diagnose or cure any medical condition.

  3. #51
    Super Chief-Ninja Moderator grammy1952's Avatar
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    the higher the TSH the worse your hypothyroidism is. It's exactly reverse the free numbers. LOL I totally get where you're at with the gluten free thing but the biggest problem is that it IS a driver of autoimmune and if you have one autoimmune, it's common to get a second. I'd hate to see lupus or something else come along. Have you ever had your adrenals checked? Low adrenals cause hot flashes too. Just a thought!
    My expert Hcg Diet advice is based specifically on the original Simeons Protocol. Grammy's personal protocol:Grammy's Hcg Diet Protocol
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    I am not a medical doctor and my statements are not intended to treat, diagnose or cure any medical condition. Please always check with your doctor for medical questions and assistance. Medical Disclaimer:

  4. #52
    Chief Moderator (my happy place :) Leez's Avatar
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    I had treatment for stage 1 adrenal exhaustion when I started the HCG in 2011. So supposedly that was resolved according to the retests. But I've recently started adding some adrenal support (a daily adrenal cocktail) and revisiting a couple of the supplements that I used when it was being treated, because I wondered the same thing about the hot flashes. I haven't had adrenals tested since then, so it could have changed. But I had the hot flashes all during that too.

    I got some gluten-free starter going last night that uses brown rice flour, and I've been gradually switching out my grains to gluten-free for cereals and such. I had to give up oats last year, so I've been souring GF grains for my hot cereal for a while now. (I usually do a mix of brown rice, buckwheat and wild rice) I need to get some sprouted GF flour so I can try some breads with that as well as the sourdough. Once I find a bread that I can be happy with, I think I can be ready to make the rest of the plunge into gluten-free. I decided to try LDN to see if I can lower antibodies without going completely gluten-free, but I suppose it can only help it work better if I do.

    Have you tried the GF sourdough from https://www.grindstonebakery.com/category/GF-STORE.html ?
    At goal since 2015. \(ᵔᴥᵔ)/ Total HCG loss: 77# [5'5" 210-133] Maintenance strategies overview
    Please note that any suggestions I make are based on the Original Protocol.

    My recent HCG round was with DietDoc. Our site owner has generously arranged for me to earn a small fee if you use my DietDoc or Nu Image Medical link to order your Hcg and supplies. (All HDI site discounts and coupons apply.) A full review of my experience and how the round progressed: my Diet Doc review and my Hcg coaching blog here

    Medical Disclaimer: My statements are not intended to treat, diagnose or cure any medical condition.

  5. #53
    Super Chief-Ninja Moderator grammy1952's Avatar
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    I haven't tried the grindstone bakery one. I'll have to check it out! I recently made some bread with cassava flour and it was really good!
    My expert Hcg Diet advice is based specifically on the original Simeons Protocol. Grammy's personal protocol:Grammy's Hcg Diet Protocol
    Grammy's author website: ColleenCoble.com

    I am not a medical doctor and my statements are not intended to treat, diagnose or cure any medical condition. Please always check with your doctor for medical questions and assistance. Medical Disclaimer:

  6. #54
    Chief Moderator (my happy place :) Leez's Avatar
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    I've been reading about casava flour. It sounds intriguing. Plantain flour too. I haven't tried them because they aren't THM approved, but I will now. I'm not going to worry about that if they work for GF must-haves. (bread!)

    The grindstone bakery one is an approved one for THM. You have to order in multiples of 4, so its kind of a commitment.
    At goal since 2015. \(ᵔᴥᵔ)/ Total HCG loss: 77# [5'5" 210-133] Maintenance strategies overview
    Please note that any suggestions I make are based on the Original Protocol.

    My recent HCG round was with DietDoc. Our site owner has generously arranged for me to earn a small fee if you use my DietDoc or Nu Image Medical link to order your Hcg and supplies. (All HDI site discounts and coupons apply.) A full review of my experience and how the round progressed: my Diet Doc review and my Hcg coaching blog here

    Medical Disclaimer: My statements are not intended to treat, diagnose or cure any medical condition.

  7. #55
    Super Chief-Ninja Moderator grammy1952's Avatar
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    Oh my gosh, I LOVE the flour! It is as fine as regular flour and it makes the most wonderful breading for chicken tenders and pork tenderloin. I'm a Hoosier so we highly value our breaded pork tenderloins. LOL I've been out of luck for years and years, but the cassava makes it just as good as the real thing.
    My expert Hcg Diet advice is based specifically on the original Simeons Protocol. Grammy's personal protocol:Grammy's Hcg Diet Protocol
    Grammy's author website: ColleenCoble.com

    I am not a medical doctor and my statements are not intended to treat, diagnose or cure any medical condition. Please always check with your doctor for medical questions and assistance. Medical Disclaimer:

  8. #56
    Super Chief-Ninja Moderator grammy1952's Avatar
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    Holy cow, that grindstone bakery bread is pricey! Over $13 a loaf, though the free shipping helps offset some of it. It sounds really good. I think I'll try ordering it. Have you found it in any stores?
    My expert Hcg Diet advice is based specifically on the original Simeons Protocol. Grammy's personal protocol:Grammy's Hcg Diet Protocol
    Grammy's author website: ColleenCoble.com

    I am not a medical doctor and my statements are not intended to treat, diagnose or cure any medical condition. Please always check with your doctor for medical questions and assistance. Medical Disclaimer:

  9. #57
    Chief Moderator (my happy place :) Leez's Avatar
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    I was looking at the $11 ones on the top row. That includes the shipping, but still $44 for 4 loaves is a bit daunting. I wonder what size the loaves are. They don't show anything you can get a perspective from. It just says 24oz loaves. That is the same weight as the Ezekiel 4:9 loaves, so hopefully they are full sized.

    I checked the store-finder and it says all their stores are in California.

    Now I really want to try the cassava flour. I heard you can get cassava wraps and chips too.
    At goal since 2015. \(ᵔᴥᵔ)/ Total HCG loss: 77# [5'5" 210-133] Maintenance strategies overview
    Please note that any suggestions I make are based on the Original Protocol.

    My recent HCG round was with DietDoc. Our site owner has generously arranged for me to earn a small fee if you use my DietDoc or Nu Image Medical link to order your Hcg and supplies. (All HDI site discounts and coupons apply.) A full review of my experience and how the round progressed: my Diet Doc review and my Hcg coaching blog here

    Medical Disclaimer: My statements are not intended to treat, diagnose or cure any medical condition.

  10. #58
    Super Chief-Ninja Moderator grammy1952's Avatar
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    the cassava wraps and chips are fabulous!
    My expert Hcg Diet advice is based specifically on the original Simeons Protocol. Grammy's personal protocol:Grammy's Hcg Diet Protocol
    Grammy's author website: ColleenCoble.com

    I am not a medical doctor and my statements are not intended to treat, diagnose or cure any medical condition. Please always check with your doctor for medical questions and assistance. Medical Disclaimer:

  11. #59
    Super Member! roselanoue's Avatar
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    Quote Originally Posted by grammy1952 View Post
    the cassava wraps and chips are fabulous!
    I love cassava flat breads. My husband is originally from Haiti and his half sister brought some during her visit. It was so delicious. My concern is if you noticed any weightmgain while eating it. I admit that it was quite addictive. Very hard but tasty
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  12. #60
    Chief Moderator (my happy place :) Leez's Avatar
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    I finally had my follow up appt after the labs came in.

    Doctor agreed to up my thyroid meds by 1/4 grain to1- Grain (113.75 mg) , but I had to commit to getting new labs in 2 months. Oh well, its something. I hate that though, because this last draw gave me a hematoma the size of half and orange below my elbow. So painful I had trouble sleeping the first 2-3 nights. It took 3 weeks to resolve. I've had needle stick bruises before, but nothing like this. No excuse for poking through my vein either. I have very prominent raised veins for them to draw from. This was just incompetence. Need to find a new lab.

    However, he is also willing to prescribe Naltrexone for me in a way that my insurance will pay for, so that's another win.
    At goal since 2015. \(ᵔᴥᵔ)/ Total HCG loss: 77# [5'5" 210-133] Maintenance strategies overview
    Please note that any suggestions I make are based on the Original Protocol.

    My recent HCG round was with DietDoc. Our site owner has generously arranged for me to earn a small fee if you use my DietDoc or Nu Image Medical link to order your Hcg and supplies. (All HDI site discounts and coupons apply.) A full review of my experience and how the round progressed: my Diet Doc review and my Hcg coaching blog here

    Medical Disclaimer: My statements are not intended to treat, diagnose or cure any medical condition.

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